I received an urgent call from a dear friend who has a grandchild who has sickle cell. She said in a very determined voice, "I need you to get the word out about the petition on White House.Gov to declare sickle cell a national priority. We must let others know more about sickle cell disease. We can not let any more funding be cut from research. Nor can we let any more clinics be closed. This is very important!" In the next breath, she reminded of the power of a grandmother's love. "You know my grand-baby has sickle cell. This is not an issue or cause, it is my grand-baby's life we are talking about."
Sickle Cell Disease is a group of inherited red blood cell disorders. Normal red blood cells are round like doughnuts, and they move through small blood tubes in the body to deliver oxygen. Sickle red blood cells become hard, sticky and shaped like sickles used to cut wheat. When these hard and pointed red cells go through the small blood tube, they clog the flow and break apart. This can cause pain, damage and a low blood count, or anemia.
Sickle Cell Disease is a major public health concern causing critical healthcare impacts in the nation. After talking through a strategic grass roots plan with my friend, I promised her that I would share her message and the information she had sent me with others. Within a few hours of us working our Rolodex, emails, and social media accounts, there was a noticeable increase in the numbers. Two days later, every Bam Mom, Big Mom, Gramma, Grammy, Grams, Grandma, Grandmama, Grandmother, Grandma, Grannie, Ma, Maw, Memaw, Mom-mo, Nanas, and one Grand Diva were contacted to sign the online petition. If they were not internet savvy, we suggested getting a grandchild to walk them through the process.
|Alaira with her mother and grandmother.|
Two days before the deadline and three days after the call, the Sickle Cell Disease Petition to the White House had met the required numbers and then some. It is amazing what happens when a community comes together for the greater good and the effectiveness of social media. It is even more amazing to see the love of a grandmother in action. It is a beautiful site to behold.
|Thank you for signing the petition!|